Anold-Chiari Malformation in the UK?

Question

I was diagnosed with Chiari last week after nearly 20 years of problems, I am looking to find support in the UK, any advice on good doctors or neurologists or information other than what is available on the US websites, I just wondered if there are many people in the UK who know about it, suffer from it, have had surgery, anything really. Thanks.

Answer 1

http://www.theannconroytrust.org.uk/info... that is a link to the Ann Conroy Trust, its a support charity for those with ACM. Based in the UK.

This is a link to the page of affiliated neurosurgeons to the charity:

http://www.theannconroytrust.org.uk/neur...

http://www.chiari.co.uk/about.html that is a link to Chiari Support UK. They have an online support forum, which may be of some use to you and seems to be fairly active.

http://www.chiariforums.co.uk/lofiversio... that is a link to a chiari forum.

hope they are of some use to you.