Question:

Any parents out there with Children with Sensory Processing Disorder?

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My son was recently diagnosed with sensory processing disorder and is having a rough time at school. He is having an evaluation for an IEP on tuesday, but it doesn't seem hopeful because his teachers and other in the school district don't know all that much about sensory disorders and it is not a NYS recognized diagnosis for treatment. Any advise/resources that may be usefull at this meeting? Also what steps can I take to help him?

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  1. http://www.sensory-processing-disorder.c...

    here is an interesting website i found

    hope it helps


  2. I'm not a parent, but I do have Sensory Processing Disorder. I'm not really sure about the IEP thing, I know it is part of my IEP but I'm not from you area, and I also have other issues to acompany it (type 1 diabetes, SLD, ADHD) But I do know some things you can do to help him at home. Things like:

    -Warn him verbally before you touch him

    -Cut the tags from all his clothes

    -Allow him to be an exta picky eater, just make sure he gets his nutrition

    -Eliminate as much background noise as possible when concentration is required

    -When you buy him clothes, make sure they are comfy for him

    -Don't force him to use flanal sheets (or other types he may find iritating) if it is a warmth issue, add more blankets on top, or take some off

    -Don't wear strong perfumes or use strong odor sprays in your home

    -Let him choose the lightbubls where possible (he'll either prefer etraordinary bright bulbs, or very dim bulbs) or get dimmers ofr you lights

    -Most people don't think of this one, but buy grips ofr his pencils, just be prepared to try many different kinds before he fins one he likes (sylicone, pillow)

    -Do you best to buy sent free soaps and lotions

    -Get his attention before you talk to him

    As far as the school meeting... educate yourself as much as possible beforehand. Educate yourslef on Sensory Processing Disorder by researching on the web, and get books from the library. Be prepared to have to teach the school all about what he may need. You may also have to show them some evidence, so bring his evaluation report. I'd bring some books with you to, so that when your educating the school, they know that you're not just making up your info. Also, educate yourself on the special education law before hand. The school is going to think you know nothing, so proove them wrong, and know your rights. This site is good for that http://www.wrightslaw.com/ . Basically, prepare a presentation on Sensory Processing Disorder to give them, and fight hard for your son. Don't give up, and don't loose heart!

    Good luck, sorry I couldn't help more!

  3. Dear Keri,

    I am the mother of a child with Sensory Processing Disorder and I am also a teacher. I am going through the same frustration with the school district with my child. A wonderful book is The out-of-sync child. You can get it at any book store in the parenting section. There are other things to consider along with this diagnosis such as auditory processing, autism etc. I would love to give you more info but needs specifics. My email is debbiemaike@sbcglobal.net It is important that you know your child's rights and that you know what you are talking about when you go into the IEP meeting. Schools are banking on parents that don't know their child's right and don't have enough info to ask for the appropriate help.

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