Anyone encounter leukodystrophy in a child?

Question

she's a one year old girl and 2 months ago she was diagnosed with leukodystrophy, is there a possible treatment? What will be her chance to live a normal life? please help!!!

Answer 1

It is a genetically transmitted disorder.  Symptomatically I can suggest a homeopathic medicine.  

Gelsemium  30.  

Its area of function would be brain in particular the area controlling the functions of eyes, throat, chest, larynex, sphinster, extremities. Nervous system, prostration, muscular coordination.  Eyes in particular.  Though a cure cannot be promised, it can certainly alleviate the sufferings of the child to a large extent and may possibly open up the door for an eventual cure.    According to the symtoms of the child a miasmetic remedy to correct the genetic disorder should also be tried by a good homeopath of the locality.

The information given above should not be substituted for a medical advise.  Please consult a doctor before administering any medicines.

Answer 2

http://en.wikipedia.org/wiki/Leukodystro...  

Unfortunately, there is no treatment or cure at this time.

There is a support group at:

http://groups.msn.com/leukodystrophyfami...  

And talk with the doctors who made the diagnosis: they OWE you an explanation of what to expect.

Answer 3

this is a new type of treatment and there are no known results that can prove right or wrong.

http://www.co-hematology.com/pt/re/cohem...

on the other hand I'd go and try to re-diagnose the case

and see other alternatives, it is hard to know the specifications of this girls health state from the statement made here, but since you are dealing with something that may have lifelong repercussions you want to make sure that what the first diagnose came up with is true 1000% then i'd look to some alternative complementary treatmets.

here are some places:

http://www.liebertonline.com/doi/abs/10....

one remedy i know for the improvement of the nervous system when the development has been impared.

a mixture of olive oil and tincture of myrrhae heated in a table spoon over a small flame. the mixture cannot be stored and has to be prepared every time. when it cools down it must be rubbed in the back's skin along the muscles near the spine. the best time to do this is after the evening's bath. done this every evening over along period of time like 3 month to 6 month can make a huge difference in the expected development of the infant, physicaly and mentaly. its worth trying since there are no negative effects or contraindications.

GOOD LUCK and BLESSES