Does anybody else have nystagmus?

Question

i'm cursed with it. are you?

i get made fun of for the way i walk because i always keep my head forward and my lack of balance. someone told me i walk like a "mongoloid."

and people are ALWAYS pointing out how shaky my eyes are, its so irritating.

what's your story?

Answer 1

My sister and myself both have the condition. Hers is much much worse than mine though, and she is legally blind as well.

I get those ignorant comments from strangers as well, such as "You're eyes are weird," or "Woah stop shaking your eyes," but I've sort of gotten used to it. I think that I am more self conscious about it than I should be though. I used to avoid eye contact at all costs, but I am getting better every day.

My sister, on the other hand, has very severe nystagmus, much worse than me. She is also a pure albino and also has extremely poor eyesight. She gets many stares from strangers, but she hasn't let that bother her too much. I am very proud of her.

Once people get to know you though, the nystagmus just disappears to them. It can make us a little self conscious, but in the end, it's just another aspect that makes us unique.

Take care!

Answer 2

well im the one whos question u just answered so u no that i can MAKE my eyes shake, but i dont do it naturally

Answer 3

there is medication that may be of help to correct your problem, find a good nuerologist, get their opinion.