Does anyone know where I can find support groups for parents that had children with a cecostomy?

Question

My eight years old son just had a cecostomy put in on June 19th of 2008 and I am looking for people like us to talk with. Can he still be an active kid? Will the site always leak? I have lots of questions for the right person.

Answer 1

although you don't say where you're from, i found a general site with information pertaining to cecostomy.  there is much information there.   the link is below.

beyond that, ask your doctor to recommend something for a support group.  he or she would be best equipped to advise.

good luck!