How do I deal with my bladder pain?

Question

I have been diagnosed with GENITO-URINARY TB by my urologist. I have symptoms of frequent urination and constant bladder pain. The AKT-4 I am taking is not helping me at all.

I think I may have INTERSTITIAL CYSTITIS too. My bladder gets full very quickly, the pain starts increasing too.

I have stopped going out, my life revolves around a toilet.

I don't know to do, I just feel like dying! I am just too depressed.

I don't think my urologist understands my problem. I have shooting pain originating from my bladder at times, like someone is squeezing my bladder, it feels so raw!

I feel like all the nerves in my abdomen are exposed, I am not able to VOID fully at ONE go! I keep STRAINING to get the LAST drop of urine out, yet I still have to go.

I sit on the toilet for at least 15 minutes, even to urinate.

I feel like there is a RAZOR in my bladder !

My scan was normal, I do not have diabetes either.

I AM TOTALLY TIRED OF MY LIFE, Can someone please guide me?

Answer 1

It sounds like you struggling with a lot of pain and health-related frustration, which totally makes sense given what you're dealing with! I'm training to be a health psychologist, and one of the things we learn is how helpful it is to have someone to turn to when you have trouble communicating with your dr. In this case, since you sound really upset, I'd recommend that you find someone you can talk to about how you're feeling (i.e. therapist, counselor, etc.) so that you have the mental energy to deal with your health issues. I'm not saying the problem's in your head-- but it might help while you're figuring out the road to recovery.  

Answer 2

I believe you indeed do have Interstatial Cystitis, there is no reason to live in pain.

Has the urologist give you any pyridium or other medications for the bladder?

I do have an answer for you and you sound like the perfect candidate.

You can get an Interstim implant. What is that you ask?  

It is a stimulator for your bladder to help with that awful pain.and frequency.  I had the total opposite, retention. but it is amazing!!

I had a back surgery that messed up my bladder...it is now a neurogenic bladder and does not work.  I have to self cath. November 2006, I had the interstim and I have felt so much better!

Have you had all the urodynamic studies. If this urologist is not listening, Find another and ask about the Interstim.

MEDTRONICS  is the company that makes the Interstim.

I would like to invite you to a FREE Teleconference... just listen, to a physician,  you can even ask questions.  

September 9th. is the next one . @ 8;30 ET

I will get the other information for you.

Teleconference Dates for 2008

Please call Toll-Free: [phone]

All calls are held on Tuesdays, 7:30 pm Central, 8:30 pm Eastern, 6:30 pm Mountain, 5:30 pm Pacific on the following days:

August 12, 2008

September 9, 2008

October 14, 2008

November 11, 2008

December 9, 2008

Participant Instructions

Please dial in 3-5 minutes prior to conference start time. Your line will be placed on hold with music until conference start.

In the mean time - go to the Medtronics site and order the FREE information about this device and get yourself educated.

What they do is implant 2 leads to the lower sacral nerves  and then implant a battery pack.  It is remarkable the difference.

First there is a trial, and if it 'works' then you go thru with the implant.  BUT i suggest that you do the implant anyway...because the actual implant is much different that the trial.  

(i have 2 stimulators Sacral nerve (interstim)and a Spinal column stimulator.

http://www.medtronic.com/neuro/interstim...

Answer 3

try to avoid going frequently try to prolong your duration and try to have little control so that the duration will be increased