Moms and Dads- anyone have experience with this condition in your child?

Question

My daughter (7 mos) was just diagnosed with Benign External Hydrocephalus. This is a cerebrospinal fluid buildup on the brain which has caused her head to grow a bit larger than is normal. All my research and my Drs. reassurance indicates that this is a condition that corrects itself with time (usually by 18 months) and no surgery is needed. However, I'd like to hear about your experience if your child has also been diagnosed with this condition.

Thanks very much!

Answer 1

I don't have any experience but wanted to give you some moral support.

I'm glad that it's something that will correct itself. Best of luck to you and your family!

Answer 2

They look wierd. But sometimes the fuid can cause brain damage.  Did you look at the rate of mental retardation among those with his condition and those without?

My wife has taught a child with the condition.  He was a special needs student.

Answer 3

It usually corrects itself.

Answer 4

I don't know about this. But I would like to wish you and your family the best. May god bless you all and give you the strength you need to deal with this.