Question:

My daughter has craniosynostosis of the metopic suture and we didnt have the surgery?

by Guest56026  |  earlier

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she is six years old now and she is beautiful. however after reading some things here on answers i am very worried that she may develop problems.she also has situs inverses reverse organs but we have no problems due to these anomolies other than fluid behind her eardrums and we can correct that with tubes.she is still small for her age she is 6 and 41 inches tall and 40 lbs.is there anyone who didnt have the surgery with no problems from craniosynostosis

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  1. Here is some info you can use.Jorge Posada of the New York Yankees son has craniosynostosis and he and his wife have devoted a foundation for this.You might want to check out their web site.www.jorgeposada.com/foundation.html... Bless.

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