My son has Angelman Syndrome & is transitioning into the school system at age 3, I need help with his IEP?

Question

My son doesn't walk, talk, crawl, etc. (part of his diagnosis), however, most A.S. children do walk & are mobile, they're just developmentally delayed. I need to get some advice from a parent or therapist how I can go about getting everything listed "the right way" in his IEP. He needs lots of P.T. & O.T so how would I say that walking would benefit him with his eduacational progress? Does this make any since? Need anyone to respond who knows what I'm going through. Thanks

Answer 1

If you are in the U.S. there are additional service providers that help with more intensive PT for these issues. In my state it is called CCS. I am not sure what it stands for. The school district will likely not disagree that walking is important to your child's ability to access anything and everything. What the arguement may come is in the amount. If you can get as much direct service as you think your son needs at least insist that the OT and/ or PT provide direct consultation and training to all the classroom staff about how to implement the teaching procedures around motor movement and that they are comfortable using any type of supportive equipment, wheelchair, walkers, braces etc. Also you may want to request monthly updates and after 2 or 3 months if you feel the progress is not adequate bring the IEP team back together (you can call an IEP anytime) to review his services and progress.

and the www.wrightslaw website mentioned previously is perfect with lots of information for advocating for your child.

Answer 2

Granted you'll probably get some fantastic answers here, I suggest go to the link below, it's the IEP Guide from the US Dept. of Education...It  will tell you everything you need to know.

Answer 3

Also go here to; www.wrightslaw.com. Go and look at laws here about IEPS and how to write a good one in detail for your sweet child. Remember, an IEP is just a foundation for the school to give your son the best education in the least restrictive environment. It has to be worked on continually in order for it to grow with your son. Your job as his advocate is to continually monitor it for success and tweek it every six months. Good luck!

Answer 4

He needs to be placed in a program designed to meet his physical needs.  A program that places emphasis on physical therapy and occupational therapy.  Some counties call this a M.O.V.E. program.  You will need to contact your County Office of Education to see if there is such a program for your child.  As far as your child's IEP...you need to make clear your expectations for your child.  Remember not to be unreasonable.  The IEP needs to be practical to your child's need not to your own needs...some parents forget this.  Good luck!!!