Reflex Sympathetic Dystrophy?

Question

anyone suffer from this or know anyone who does? i've been diagnosed with it for 2 years now..its a pain...literally...every day..all day...no cure..and no medicine to help deal with...how do you handle it?

Answer 1

I've had RSD/CRPS since I was 13 after having a knee surgery. My right leg from my knee to my toes was affected, but thankfully I've been in remission since the end of March following a low dose ketamine infusion. I've had a ton of other treatments which all gave me no relief or only temporary relief. I've had a hard time learning to adapt to living with so much pain, especially being a high school student, and teenager. I've worked with a pain management psychologist who has been able to help me learn to cope, and manage the pain as effectively as possible. Even now that I'm in remission I am still having trouble adapting to life without pain. I had to keep myself busy all of the time whether it be school or swimming I was able to keep my mind busy so I didn't think about the pain as much, but things are still very hard. Good luck with your pain!