Suppport group for Colostomies???

Question

My daughter has a colostomy and few other health problems along with it. She's had her colostomy since she was 2 days old, she's now almost 10 months. I live in a small town so there's not alot of support groups offered here for anything. If anyone knows of a website for this purpose I'd love to have it. I goggled for it but found nothing. There are websites for ppl with colostomies but not for mothers of colostomy babies. Please help if you can.

Answer 1

hi katie, I am a female ileostomate due to crohn's disease dxed at age 12 and recvd my bag at age 17.  If she has crohn's or ulcerative colitis, try the crohn's and colitis foundation of america's site at www.ccfa.org.

Does your daughter have a visiting RN come to the home? Can she recommend any support groups or perhaps her pediatric GI?

The united ostomy association of america has a site to locate a support group. see below.

http://www.uoaa.org/supportgroups1.shtml

This group is just for kids w/different illnesses and their parents, maybe they can help?

http://dragonpack.com/

I use to run a support group for the local ostomy chapter where I live until I had my stroke 3 yrs. I am now a visitor advocate so feel free to email with any questions you may have.

best of luck to you.  :)

Answer 2

You'll find that most of those forums are for caregivers as well so you will be more than welcome at any of them.

http://www.ostomates.org/forum/ is a great online forum (but I'm biased lol)