Turner Syndrome, What happens when they reach the age of 25?

Question

I have a 17 year old sister that have turner syndrome. She went through hormone therapy for about 4 years. When she reached her teenage years , she started having problems with her kidneys and she is now prone to diabetes. What happens to girls to have TS when they reach the age of 25? Is it true that they will also experience pre-mature aging?

Answer 1

No, I'm not aware of any correlation between premature aging as such and Turner's.  There are medical issues she needs to be aware of, though, like cardiac issues and the propensity to diabetes you mentioned. When you say she "went through hormone therapy," do you mean estrogen or growth hormone?  If she's 17, she's probably old enough that she's stopped growth hormone, but she still needs to be on estrogen/progesterone replacement therapy.  Adequate HRT throughout adulthood is *very important* in women with TS, and the current thinking is that women with TS should remain on HRT until 50 or so, the age at which menopause would naturally be beginning.  It will do a lot to combat osteoporosis and other issues.  I don't know why you picked 25, but there's nothing in particular that "happens" to women with TS at that age or any age, they just need to be aware throughout their adulthood of the medical issues that can arise with TS and be sure they are getting good medical care from a doctor who is knowledgeable about the condition.  The Turner's Syndrome Society of the United States is a great resource for keeping up with the latest medical research on TS - http://www.turnersyndrome.org.

Answer 2

hi!

I havent heard much about premature aging in turners, have you read this article?

http://serendip.brynmawr.edu/exchange/no...

it gives a little conversation between teens with turners so insight into how THEY feel about this condition that plagues them with prejudgements from people who DONT KNOW WHT THEY ARE TALKING ABOUT

She may experience problems like osteoporosis young but i think you need to take it as it comes!

Answer 3

yes,your sister genotype is 45X instead of 46XX so she has pre maturity problems,gonadal dysgenesia,infertility,cardiac problems,.........