What do i do? im not sure?

Question

my 18 month old son has a rare blood disorder called hemophilia b. and im pregnant and the disease is genetic im a carrier for it i just found out that im a carrier and if this is a boy then he has a 50/50 chance of having it and im so so scared that this baby is boy and he might have it. last saturday my son almost died and it scared the h**l out of me. does anyone have any advice nice advice plz.

Answer 1

PRAY

Answer 2

If your second child is born with this disorder, you can foster a 'we are in this together' type of attitude for the siblings.

It is a static condition meaning, it does not morph into something new everyday with different signs and symptoms presenting.   Educate yourself and do not be afraid.  Understand what it is and isn't.  

No one expects you to absorb this information and be prepared to ask good questions when you are first informed about the fact that you are a carrier.  Write down what you want to know and go back to you health care provider.  They are on your team, take advantage of their knowledge.  This is the first time you are dealing with this, health care providers have, unfortunately, dealt with this before and are there to help you.

Invest in medical ID bracelets/necklaces get them used to them now and you will have one less thing to worry about when they go to school etc.

www.hemophilia.org is a place to start for information and support.  

Good Luck and remember, you are Mom.  You are the only advocate, defender and white knight your kids have.  Make it your mission for you and your kids to control this disorder instead of the disorder controlling you all.