What is the number one issue that special needs parents face.?

Question

What is the number one issue that special needs parents face.?

Answer 1

Professionals not considering our perspective valid because we aren't in the classroom, or don't have a teaching degree (even if we have a degree in something else).

Answer 2

Having to fight with the schools to help their chilld

Answer 3

time needed, understanding and school system educating themselves, schools staying in communication with parents other then letters going home once a week.

Answer 4

I would imagine that it would be the same as any parent of any child? Am I doing this Right and Is my child getting everything he/she needs and deserves?  Sometimes all parents have to ask where the manual or directions are.

Answer 5

Even parents with regular ed. kids  face "getting their children's needs met"

I'd say believing in you, your family and the child because there will be so many people telling you what he/she can't do, you have to be stronger than that and never give up on your goals and dreams for that kid.

Answer 6

Am I going to be able to get my child the help that they need?  That is the question I think most parents face that have a child with special needs.  Then they face the fear of failure - the fear they will not be able to get them the help that their child needs because the system fights so hard to keep from helping the children as they are supposed to.

Answer 7

I have a daughter who has special needs. From talking to other parents in the same situation as me the main complaint is getting the proper support from the authorities who are there to provide it. Everything you need, that should be provided without question is a fight to receive. I include in all this the proper health care, the right support in education, help from social services and generally help for families that care day to day for a child with special needs.