Where do you go when you've been labelled 'difficult' by doctors....the vet??

Question

I think I have "Elaine from Seinfeld Syndrome"...

I've had strange unexplained hip joint problems for the last 3 years, and feel like every doctor has given up on me. The problem is getting worse, changing all the time, I have a hard time walking, I'm in constant pain, the pain is moving to my other joints, wrists, fingers, knees, and now I'm getting weird nerve sensations in my thighs, like waves of goosebumps or like when your foot falls asleep.

They say they can't help me because they don't know what's wrong. Every test comes up normal, even x-rays, bone scans and mri didn't show abnormalities. I don't have arthritis, I don't have bursitis, I don't have osteoporosis, it's not diabetes, it's not a thyroid problem, not a nerve problem. They look at me like I'm pretending, like I'm making it all up and wasting their time, they cut me off before I'm finished explaining what I'm feeling, and I leave no further ahead, they won't even give me anything for pain because they don't know what they're dealing with, and regular otc drugs don't even touch it. I don't know where to go now, who to turn to. I've thought about giving up trying, but the pain I feel daily reminds me that this is not going to go away, and I am desperate for relief, so I keep trying.

I'm not in a financial position to try alternative therapies, although I did try acupuncture, acupressure, deep tissue massage and physiotherapy out of desperation. None have helped with anything except making my wallet lighter.

Answer 1

I would not label you as "difficult", it is just hard to answer the question when you don't know the answer.  I fought with doctors for 2 years after they gave up on my grandma (I was her caregiver).  I kept her alive for four years after they stopped trying to fix her.

Unfortunately, the answer to your question is in your question.  No insurance, no money, no treatment.  It isn't right.  I don't know how to fix it.  I know with problems like this sometimes you have to give up on finding the cause and just go with a treatment plan that gives you the best quality of life.  Go to your regular doctor and ask for a referal to a pain management clinic.  

Good Luck and my prayers are with you!

:)